UPDATE: The Burden of True Love: Dedicated to Marina Krim in her unthinkable loss

I seem to have an unhealthy obsession with death of late. It is quite disturbing and not really conducive to a light and smiling existence. Instead I have strange visions of myself being injured or worse one of my beautiful boys. I try to tell myself that living in fear of death is a waste of life and I know it is, I can feel it is, but now I have so much to lose, so much to miss in the growth of my two little toddler boys into young men and god permitting, adults. I watched Shadowlands tonight, and I knew I shouldn't but it is a beautiful story and a true one. Non-fiction is always more magnetic to me but unfortunately usually contains the real tragedy of the absurdity of our lives.

C.S. Lewis although a committed Christian and successful author had never really fallen in love. His life was perfectly balanced, clinical and in control. Until he met Joy quite late in life. Her massive IQ and wit derailed his limited existence and he fell hard and passionately in love with her. But by some strange fate it turned out she had cancer and died only four years after they were married. His life was turned upside down and back the front and was taken completely out of his hands. In spite of this he recognises that the happiness she brought was worth the pain. I love the part where he says to her on her deathbed "I love you Joy, you make me so happy, I never knew I could feel such happiness... you are the truest person I know." 

What is more devastating than their love cut far too short is Joy having to leave her boys, when still only boys very much still in need of their Mum, behind alone, without her. As a Mum I find this almost unbearable to watch let alone imagine for my own boys. 

I know that people somehow survive this kind of loss, the pain, although never completely gone, reduces and life crowds in to distract you. But I buckle in two at the thought, I don't seem to be made of the stuff that those that continue are. I feel like my insides are custard, probably soft and malleable through never having been through anything even close to this harrowing. 

I only wish that my fears will work to drive my enjoyment of the moments I am having this second, when my boys still love cuddles and kisses, and say things like "You are my true love" or yell with glee, "Mummy, Mummy" on my arrival home from work, running at me with arms splayed ready to be easily swung in the air, my face buried in their soft necks breathing in their innocence before bursting a raspberry onto their perfect skin, and drinking in the erupting giggles that this all imbues. 

Like C.S. Lewis, my nightmares will probably never cease, but if the worst were to happen and I end up broken by grief I hope I remember they were worth the pain, every precious second knowing them is better than a pain-free existence never having looked into their eyes of joy and wonder, and realising they are the joy and wonder of my life. 

Sending Kevin and Marina Krim the strength no Mother can imagine having,
as you face the most terrible of losses x

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Make it go away Mummy

This past week has been surreal, in fact if I think about it this past year has. Something changed though last Wednesday when my son was diagnosed with pneumonia. I can’t yet put my finger on it but I suppose this post is a way to help me do that.

I feel a bit broken to be totally honest, just watching this little human that just happens to be the centre of my universe, cry out in agony while I know there is absolutely nothing I can do to stop it or fix it, is soul destroying. And watching his eyes, that have seen only two years of this world, staring at me, questioning why they are in pain. It is the closest thing to hell on earth.

I can’t imagine what parents who have kids that are seriously ill have to go through, if this is what it feels like when your child has something that modern medicine can fix. I think it’s the helplessness that's the killer. I want to run out and study medicine, but I know that wouldn’t solve everything and would probably reveal how little we actually do know. Basically I need to be Samantha Stevens, when the pain hits I just wiggle my nose.

Witches aside for a moment, this got me thinking about resilience. Our children are going to face pain, and lots of it, and most of the time all we will be able to do is sit by and provide comfort and support. So how does one prepare to be useless in the face of your children’s biggest crises? How do you stop shutting down inside to cope with our own pain at having to watch our angels get attacked and have to fight for themselves?

Unfortunately I have no idea, lately if I don’t run around keeping busy, staying numb, I basically want to scream, “Why does he keep getting sick? Is it my fault? What can I do differently? Surely there is something that can be done?” Our doctors have answered these questions for me and they go something like “He’s in the normal spectrum of illness frequency for his age, it is not your fault, if he didn’t get these infections now he would get them at school, no his diet is good, he’s active and you are using probiotics and supplements and washing his hands, no there’s nothing more than antibiotics if it’s bacterial, immunisation against some real nasties but mostly it’s viral and he will just get over it in 7-10 days, summer is better”. This doesn’t stop my incredulous reaction when after maximum of two weeks good health another feral virus mows my boy down. It also doesn’t stop me blaming myself for pretty much the whole sorry situation.

All I know is I am tired and sad and feeling incredibly sorry for him and myself. I want to take the pain away, I want to wrap him in my arms and shield him from this torturous world. He, of course, is managing having one of the most serious respiratory conditions around like a champion, and other than needing a little more sleep and cuddles, is being his normal cheeky and charming little self.

If only I could be so brave and strong…but maybe screaming when you feel helpless is the best reaction. Aurora, Emma’s mother in Terms of Endearment is her and my hero, and she’s screaming, as is perfectly appropriate when you are watching someone you love more than life itself work through pain.

So if you don’t see me here as often, it’s cause I’m off somewhere helplessly screaming loudly or more often, quietly on the inside.

How do you handle it (or not) when your child is in pain?

©MyIdeaLife, 2011, All rights reserved.

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